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Caring Bridge – Health Update

I had two doctor appts on Tuesday and have some updated info on my other health threads I reported in previous posts.

First…reconstruction update: met with my plastic surgeon. Told him that I was ready to stop expansion. My left side that received radiation last year had a really hard time recovering from the last expansion. I had a lot of pain for a couple of days and the skin was all red, which was improved with time but hasn’t gone completely away. So I told him that I was concerned if we kept going that it would increase my risk of complications on that side. Not sure he was entirely happy with my decision (worried that I would later wish I had gone bigger), but I know my body and am comfortable with my choice. He wants to wait two months from my last expansion on Oct 8 before the surgery. So I am looking at early December. I CAN’T wait to get these expanders out. I have had them for over year now and I am over it. If all goes well with December’s surgery and there are no surgical complications or issues with symmetry, I will be looking at one more surgery after that to complete the reconstruction and then be done. Crossing my fingers that all goes well.

Second…intracranial hypertension: met with a neurologist. The official diagnosis is pseudotumor cerebri (PTC). This means that I have increased intracranial pressure with no definitive cause (no tumors or growths, no blocked cerebrospinal fluid (CSF) drainage). It is likely a side effect of one of the drugs I have been given over the past year. She recommends weight loss and a diuretic. The one she prescribed actually suppresses the production of CSF, so I am hoping for some relief from the symptoms while I lose the weight. Just started it yesterday so crossing my fingers that it works.

So..moving right along! Heading to Plymouth for our annual Halloween camping trip. Looking forward to it. Bought some more Halloween decorations this year so it should be fun decorating! Have a great weekend everyone.

Love Cindy

From my Caring Bridge supporters:

Hi Cindy,
Sounds like everything is progressing. Glad to hear. No one knows your body more than you, so don’t let those doctors push you in a direction you aren’t comfortable with. Somehow I don’t think that would ever happen for you! All the Best,

— Maria, October 28, 2013

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